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National Paediatric Diabetes Audit

The NPDA collects information on the care and diabetes outcomes of all children and young people receiving care from paediatric diabetes teams in England and Wales, and reports an annual core dataset.

The sole aim is to provide information that leads to an improved quality of care for those children and young people living with diabetes. In addition to our core annual data collection and reporting, we deliver national patient and parent reported experience measures (PREMS), and investigate specific aspects of care and service delivery through spotlight audits.

Background

The NPDA is an audit of the care processes received and outcomes achieved by all children and young people attending paediatric diabetes units in England and Wales.

It is funded by the Department of Health through the Healthcare Quality Improvement Partnership (HQIP) and is currently commissioned until 2025.

RCPCH has reinvigorated the paediatric component of the high profile National Diabetes Audit, introducing a number of innovations and efficiencies. These include measures of patient experience and the use of inventive approaches to data collection, which minimise the burden on clinicians.

The RCPCH's Clinical Standards & Quality Improvement team delivers the audit. The audit's Clinical Lead is Dr Justin Warner, Consultant Paediatrician. Local clinical leads support the audit across the country.

The audit is counselled by a Project Board and Methodology & Dataset Working Group, who meet quarterly at the RCPCH. You can download the terms of reference for both below.

Aims and priorities

  • Build on and improve the previous joint adult and paediatric audit
  • Collect a clinically meaningful dataset
  • Engage clinicians, patients and parents
  • Improve awareness of NPDA findings and maximise their use to drive national policy
  • Develop the use of NPDA data in local and national quality improvements
  • Use a regional network approach to data collection
  • Capture patients' experiences
  • Collaborate with the suppliers of the adult audit to ensure information around transition to adult care is captured
  • Report at timely and regular intervals
  • Develop user-friendly tools to interrogate the dataset
  • Support centres wishing to develop local action plans to improve diabetes care
  • Maximise the use and availability of data for research

User Groups

There are three different levels of user types within the NPDA portal, each with varying levels of access and permissions. These user types determine what aspects of the dashboard they can view or amend, ensuring that the right individuals have appropriate control over the data.

Coordinator

Coordinators have the highest level of access within units, and this role should be assigned to clinical leads. Coordinators can upload, add, and remove data, as well as view site-level information. Additionally, they have the ability to add new users to the NPDA data capture system for their unit.

Editor

Users with Editor status will have the ability to create and upload data to the platform. However, they will not be able to delete any data or access higher-level unit information. Editors will not be able to add new users to the platform.

Reader

Users with Reader status will have restricted access, allowing them to view patient information such as NHS number and visit date, as well as unit-level data. However, they will not be able to amend any data, upload information, or add new users to the platform.